Still not in the greatest place atm. I have an urgent Drs appt this afternoon, I'm asking for a referral to a psych; an older {than me by a good 20 years} woman with a wonderful reputation. Works very close to us and my Dr, and a friend of mind found her wonderful. The psych I saw the public hospital left me feeling worse about myself every time I saw him, so it's time to ditch the public system and go private. Am embarrassed to admit this is only possible because I now have a disability pension card.
I'm a little unsure of where to start with her. Do I just let her do a complete history, without mentioning bipolar {as I'm not 100% sure I agree with the diagnosis, considering I haven't had anything close to a manic phase in 2 years, despite only being on ADs}. Do I just start all over again and see what she thinks?
Or do I go in, say I have this, this and this, and work from what may be a slightly questionable diagnosis?
Either way, something's got to give. My fear of leaving the house has turned into a fear of leaving my bedroom. I don't mean that I can't actually leave. Of course I can. I have 2 children and I cook and clean where I can. But there is what almost feels like a physical pull to bring me back to my 'safe' place. This room, this bed, this computer. All I want to do is read, browse, blog or sleep. I don't want to talk to a soul.
Joel said something to me the other day {He'd asked me the day and I mentioned that I never know anymore. When you don't leave the house for weeks at a time, they kind of fun into each other. Especially on school holidays}. He offered to rearrange his day and come home early on Friday, so we could all go to the park. He said I must just be so desperate to look at something other than this house.
I smiled and murmered something in agreement. We'd take the boys somewhere. But my stomach fell and I felt I'd be sick. It felt like there were rocks in the pit of my stomach. Just dread. Dread at having to leave my sanctuary.
I blogged last week about my 'friends in my computer' and someone (I think it might have been Bron - Maxabella?) very gently and sweetly pointed out something I know to technically be very true, and very important.
I agree that the blogging community is supportive, caring and marvellous, but it can't take the place of the wonderful world outside your door. What I think some of us forget from time to time is that bloggers are just a random assortment of people, so it leads me to believe that everyone (blogger or none) is supportive, caring and marvelous if only we would open up to them...And of course, she's right. Kind of. There are lots and lots of lovely people out there. It's just that a)the ones I want, the ones I opened up to and let myself love and lean on are not available to me anymore. And b)I'm utterly incapable (terrified?) of getting out there and facing anyone else. I can't make eye contact anymore and I can't do small talk anymore. I can't tell you I'm struggling, I don't have the words. I would just end up sobbing and embarrassed. But I no longer have it in me to pretend I'm anything other than a blubbering mess.
So it's easier {on them, on me} to stay in. Stay away. Keep my phone off the hook. Keep my door locked and my window closed. Use the computer and {if I absolutely must} text messaging.
And I can lean on you. Because I'm not sure how random we are. I think that even in the blogging world, for the most part {certainly there are plenty of exeptions} like meets like. I can point to more than a dozen blogs of people struggling seriously with major mental illnesses, major social anxiety, depression/bipolar/PTSD/PND etc. People who would be happier never to leave their houses again. Of course I know others who feel the opposite and feel that being cooped up inside is contributing to the problem.
I know it's worse since I stopped driving. Since I became vision impaired {for want of a better term. I don't know how to refer to it. It's one number up from legally blind? Impaired enough not to see across the street or read a sign or watch a normal tv or read a book or ever drive again, but not enough to be legally 'blind'. What do we call that? Sif, do you know?}
Without the ability to just get in the car and force myself to visit Tam, my sister in law and probably the only person I could actually visit, it's gotten far worse. I don't do the shopping anymore, it's split between online and Joel on his way home from work. No chemist runs. No Drs appointments without Joel and the boys with me. No trips to the library. I'm too sore, cannot physically walk around a shopping mall anymore {we tried it yesterday. I'm paying dearly for it today}.
But for now, there's just this. There isn't much I can change. There's nowhere within walking distance {especially in my current physical state} to just 'go', to get out. Noone I know within walking distance. No groups I could join {I'm going to be honest. That's a terrifying thought}. Noone is coming to me. And now I'm more terrified of them coming to me than I am of me going to them. At least if I go, I can leave when I need to. Someone intruding on my safe place...that's the worst thought of all.
I don't have anything specific I'm afraid of. I know I keep mentioning 'terrifying'. And one of the things that used to annoy the ever-loving-crap out of me with my last psych and with the mental health nurse was mid anxiety attack, or when I was in a state of high agitation, they would say "what are you thinking about?" "What do you think is going to happen?" "What do you think will happen if you go out?" "what do you think will happen if you stop scratching?".
I don't F*ing know. Am I the only mental case {excuse the term, it's just how I'm feeling as I sit and analyse this} who isn't really congnizant during all of this? That doesn't have a specific fear? Simply a compulsion? A piece of imaginary elastic tethering me to my home? A compulsion to scratch,to do something with my hands. An absolute inability not to shake my legs.
I'm not curled up scratching my arms thinking something bad is going to happen if I don't. My legs aren't shaking because I think I'll die if they don't. They shake because they must. I'm not scared of leaving the house because I think something terrible is going to happen {except that I may be looked at and there is literally nothing worse than that thought. There's nothing I won't do to avoid being looked at, even by Joel, my Dad, our family}. It just is what it is. I don't have any of the answers they seem to want from me.
Am I alone in this? Friends, when you have an anxiety attack, what are you thinking? And do those stupid, F*ing breathing exercises do anything at all for you? Other than make me literally want to hurt the stupid b!tch that keeps telling me to do them? What the hell does she know?
I'm rambling. This wasn't even supposed to be a post. This was supposed to be a Pinterest pic post, using a colour I'm drawn to at the moment, with a quick "I'm not myself at the moment, Sorry". Look what I did. I vomited all of my angst and some of my anger and my fear and my frustration all over this stupid blog {let's see how long it takes this new Psych to ask me what a blog is and make me feel like a moron or an oddity, amongst oddities like the last ones did One of those computer people....}.
I know that she will tell me {or I can tell me} to eat better {absolutely essential, I realise, though hard with the Pred}; get exercise {even my Rheum agrees this is currently impossible} and get good, regular sleep. I don't even know where to start with the sleep. My sleep patterns are all over the place. I'm rarely asleep at night before 2am. I wake and sleep for 3-4 hours until 5ish before I get up to get my boys off to school & work. By which time I have Sammy until 5ish and everyone comes home. On the weekends I sleep each afternoon, for as long as I can get away with it. Partly through exhaustion. Mostly through escape.
The escape is worrying me. It's hard to admit this on here, but usually my diazepam lasts months. My last packet has not. It has lasted about a month. In the past few months I've gone from needing them occasionally for panic attacks/agitation, to needing them at night for muscle pain to now needing 10mg-15mg every night to calm the agitation and let me sleep. I'm afraid of that. I know it's addictive. I know I have an incredibly addictive personality. But already, my brain wants something stronger, something that will make sleep dreamless and deep, easy to come by.
But to her {and I will understand why} I will sound like I'm just making excuses. How do I get a Dr who understands the multi-disciplinary medical issues I'm dealing with and look at the big picture, the entire story. Not just the depression or bipolar or whatever it is. Not just the diabetes. Not just the Fibro. Not just the auto-immune that's still up in the air. Not whatever the hell happened to my eyes. Not just the obesity. Not just that I have a strong family history of screwed-up-ness and am the mother of one {possibly 2} boys with autism {not that that's nearly as stressful for me as it is for most. I'm incredibly lucky there}. Not just that some really,really bad stuff has happened to me {I did have a Dr joke to me, after I'd kind of hinted at it that I was a psych's wet dream! He didn't use those words, I used them and he laughed nervously and kind of agreed,lol. I have a bit of everything, he said}.
So what do I say? Where do I start? And is there anyone out there that this makes sense to?

It makes sense to me. A brave and powerful post, Melissa. Am here if you want to chat. Tara xxx
ReplyDeleteSo glad you're seeing the doctor tomorrow- you have too much to deal with on your own, you and your family deserve much better times. I can't imagine what all that must feel like, but I can tell you I don't sleep before 2am most nights either. We have that in common.
ReplyDeleteI hope you find someone who you gel with and that you come away from your sessions feeling so much more hopeful about what lies ahead.
I have know idea what to say and can't help Melissa but just want to add my support and let you know I'm thinking of you. I know when I'm facing something scary I just tell myself 'one little step at a time'. But Yay you - you are addressing things. That deserves a big high 5 I think :O) Take care of you.
ReplyDeleteOh Melissa. I am so, so sorry that the hole is getting deeper. My heart goes out to you.
ReplyDeleteAnd yes, I think you are right about the connections we make in the blogosphere. People drop by (for whatever reason), but the ones who stay are the ones who find something to resonate with. Sadly far too much at times.
Just a thought: Could you print this page and take it to the new psych. Just hand it to her and let her see just what you are confronted with. And what she needs to help you with.
Sending so many good wishes your way.
Print this Melissa and give it to the psych at the start of your visit.
ReplyDeleteHugs
xxx
I had a bit of a epiphany on the weekend. I took one of the sleeping pills the doc gave me for the first time. It wasn't enough to put me to sleep but it loosened my mind and it started to wander. I worked out what my greatest fear is. Emotion. I was terrified of feeling anything for fear that I might feel something bad. So I would sometimes stay at home because nothing much changed there, so my emotions didn't vary and I could maintain control. I'm now trying to just feel thing now. I'm stopping myself from building the emotional fortress. My fear of the bad inhibits my ability to truly appreciate anything good so in the end all I feel is bad.
ReplyDeleteI can't tell you what you're afraid of. I can just hope different experiences can help you explore possibilities.
What you say makes perfect sense to me. When you're deep in a depressive episode all those self help strategies sound like an absolute joke as does anyone who suggests them to be of use (don;t get me wrong, they're all vitally important to prevent or minimise the slide but they do sweet FA when you've already gone).
ReplyDeleteGood luck with the psych Mel. I truely hope she is able to help you. Can you take some time out eg: 2 weeks in a private psych unit??? This is what has helped me in the past. Followed by being kind to myself when I came home and allowing myself to gradually recover.
I feel for you so much. It's a horrible place to be and I wish for you some relief. xxxx
Melissa I don't know what to say either. I'd reach through and give you a big hug if I could and come round to help you. I would honesty give the new psych this post to tell her how you honesty feel.It makes sense to me.I just saw the previous person suggest it too as I was about to publish.
ReplyDeleteI am sorry you have no one close by who can come to you, I hope you find a support network you have an incredibly diabolical load of real medical issues to deal with. It will take a multidisciplinary approach. It is no wonder you are struggling with the weight of it all. Xo
Wow - just read this. For now (I'll be back later), let this new dr ask you. Let her start afresh. She has fresh eyes & may see things very differently from your last dr. Good luck with it all. (I know it's been said before)... Big breath in before you go into her room & slow breath out. Pull your shoulders back & down - gently & let the dr do what she has to do!! Take care!
ReplyDeleteI couldn't read this post and not say something. I only wish I could say something helpful, I only wish there was a way I could just spend a couple of hours with you, just chatting about whatever you wanted to chat about. I hope this new doc can be of some help. You at least are acknowledging that you need more help and that can only be a good thing. We all have dark days but you have so much on your plate it is only natural that you are struggling with it all. My heart goes out to you and your family, I sincerely wish there was something I could do. Stay strong Melissa, Hugs to you all.
ReplyDeleteall i will say is bug hugs hun i hope you can finally get some decent help
ReplyDeleteand that when you come through this you will be stronger then ever
xxx
I wish I could help in some way. Big hugs for you, and I really hope this new doctor is amazing and can help you find away forward out of this xx
ReplyDeleteSo glad you are seeing the doctor my gorgeous Liss. What you are saying makes sense to me in that it echoes my own experiences of anxiety and depressive episodes.
ReplyDeletePerhaps print this out and take it with you?
Much love to you from a person inside the computer who truly is here to listen xxx
I'm with those who have suggested printing this post and taking it to your appointment. I hope it goes well.
ReplyDeleteI don't thinkg that blogges are just "random people out there" per say, as the online world opens us up to many more people giving us more probability of finding someone who clicks with this or that to us.
ReplyDeleteI have opened up to people. I spent years trying and trying again only to be let down, ignored, brushed off.
Maybe it's that people aren't as kind, or understanding in person? I don't know. It's not easy. I wish I had the answers. I wish I could give you the answers.
I hope this new psycologist works. I would personally leave it to start new. Ask them to reassess you now, as things have changed. Start on a clean slate. Good luck!
I really hope you find some answers from this new doctor. Thinking of you. x (I also like the idea of printing this post out and taking it with you...)
ReplyDeleteMel, I do hope that this meeting with your new psych can help you get out of this hole, I strongly agree to take this post with you. Take small steps, one at a time. Thinking of you xx
ReplyDeleteHey Melissa. I couldn't read and not comment something. It was your Pinterest turquoise colours that drew me in initially. If you want more information on Turquoise, come find me x I'd be more than happy to do what I am permitted at this distance.
ReplyDeleteAs you may be aware, I come from a different perspective to that of the psych's and medical/medicated solutions that are widely available and sometimes hugely overrated. There is so much I want to address with you but I feel this is an inappropriate forum for that. It's also really difficult not being able to see you (but not impossible).
Fpr now, know that I don't actually think it's so odd that you can't make small talk or eye contact (I haven't made small talk in years! Sometimes I know it's received negatively, but so be it... Conservation of your energy and preservation of your Self is infinitely more important that being socially pleasing, and you're not even being unpleasant by not talking!). I also don't think it's necessarily a 'bad' thing that you don't go outside the house at the moment.
I want to say to you that perhaps it's how you are viewing these current behaviours and the automatic survival instincts you are performing at the moment that are making the stress and anxiety build to scratching/leg shaking/diazepam-reliant point.... it's a bit hard to unravel, as obviously you haven't shared all (that's not actually possible via one post, I know!). But I really do believe that the key to a lot of this for you is to relax yourself from this strangehold you have on viewing yourself as being strange, odd, wrong, unentitled.... Stop listening outside yourself. Start trusting inwardly.
Can you start replacing these self-deprecating ways you see yourself with more life-giving phrases? Little by little?
Really feeling you, and feeling really sad that I can't do more. Xxx
I just want to come through the computer and give you a big hug and tell you that "you are strong and you can do this". I know how hard it can be and I've beeen in that place you are in before. I'm finding the medication I am on (Seroquel) is good for heloing me sleep, otherwise I am like you and am lucky to get 3-4 hours a night without it. It also helps to settle my agitation/anxiety as well which I have been told is actually liked to my "manic" state. I hope this new Pysch works for you! I've been seeing a private one too but have left him because I wasn't happy and I'm not seeing anyone anymore.
ReplyDeleteJust read this Lissy and it breaks my heart. How strong you are to keep breathing day after day, feeling like that.
ReplyDeletexxxxxxx
Yes, I understand and yes, it makes sense and strangely enough, I find myself in a similar situation.
ReplyDeleteHang in there, okay love?
*hugs* it makes sense..
ReplyDeleteHi Melissa, I have just commented on an earlier post of yours, but once again, I read your words and feel compelled to reach out to you! I don't know your situation very well, and I can see you have alot of health issues aswell to deal with, but I do know alot about mental health issues...I have been there, exactly how you said ~ keep the curtains closed, phone off the hook, hide away at home with my kids...I have sat in the psychiatrists office, squeezing my arms in agitation,whole body shaking, unable to make eye contact, with him asking me 'what are you thinking right now?' (Yes, condescending, to say the least!) I have battled with medication, been suicidal, and have spent a week or so in a psych ward aswell...(Being hardly able to leave the house, this was a huge ordeal!) I have struggled with depression, severe social anxiety, generalised anxiety, borderline anorexia, for years...I guess what I am trying to say is that I get it ~ at least a little bit! And I know how incredibly tough it is to meet dr after dr, counsellor after counsellor, and try to 'gel' with them...I see this post was a month ago now, but I hope you have had some success with the new dr! And please don't discount your online friends...Life is incredibly lonely when you are limited to the four walls of your own home ~ I know this all too well! If you would ever like to chat, feel free to email me, or follow my blog if you like...Hang in there! Chantell
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